A registry of cancer cases helping improve cancer care
To improve cancer treatments, it is important to collect data. This is why we have created a cancer database. This registry serves as a cancer information center, compiling information about each cancer patient’s treatment. This information is collected for the remainder of the patient’s life.
The database was created in 1987 in order to comply with N.C. and Virginia state reporting laws and to meet the national requirements of the cancer program standards established by the American College of Surgeons. The information enables healthcare providers to track cancer trends and treatment outcomes.
What information is collected for the database?
The cancer database follows state and national data standards on the information that is collected, including:
- Demographics (address, county, age, race)
- Cancer (type of tumor, size, spread of disease)
- Follow-up (date patient last seen by physician, health status)
- Recurrence (how long until recurrence, where disease recurred)
What happens to the data?
The data is reported quarterly to the N.C. Central Cancer Registry in compliance with state law. State confidentiality laws protect the patient information. Once a year, information is also sent to the National Cancer Data Base (NCDB) in Chicago, IL. The NCDB enables hospitals to compare their patterns of care with other hospitals.
Who collects the data?
A staff of specialists called certified tumor registrars (CTRs) collects and reports the information. To become a CTR, a candidate must pass a national certification examination and maintain continuing education credentials.
Ongoing research is necessary to combat this disease and help those living with cancer. Your individual case, treatment and recovery statistics will help further the progress of cancer research.