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CHARLOTTE, N.C., April 21, 2017 – The first federally funded pediatric Hemophilia Treatment Center (HTC) has arrived in Charlotte. This means that all children with bleeding disorders will have a new specialty medical home for treatment, education and supportive services in Charlotte. The St. Jude Affiliate Clinic HTC provides access to specialty trained physicians, nurses, physical therapists and social workers who have extensive training in taking care of children with these rare complex disorders.
Hemophilia Treatment Centers provide treatment that adheres to national standards while offering innovative therapies and a national network of consultants for this unique patient population. According to the Centers for Disease Control and Prevention, a study of 3,000 people with hemophilia showed that those who used an HTC were 40 percent less likely to die of a hemophilia-related complication compared to those who did not receive care at a treatment center.
“Since moving to Charlotte in 2005, one of my dreams has been to see a pediatric hemophilia treatment center grow and flourish in our community,” said Dr. Paulette Bryant, a pediatrician at the center. “I could not be more grateful for our patients who have been pushing us to establish an HTC locally and for all of the HTCs in North Carolina who were supportive of us through the process.”
The St. Jude Affiliate Clinic HTC, located at 301 Hawthorne Lane, will allow patients to participate in a national hemophilia registry and other research opportunities currently not available in Charlotte. Parents and young adults will have a voice in directing their care through the newly planned parent advisory board. These patients will now be able to participate locally avoiding the travel to Wake Forest, Chapel Hill and East Carolina for comprehensive hemophilia care.
The 2017 Hemophilia of North Carolina Family Festival & 5K Walk for bleeding disorders will be held on Saturday, April 22 at 9 a.m. on Mint Street at Third Street and Martin Luther King Boulevard in Charlotte. Participants are encouraged to either make a donation, raise funds on their own, or both. Physicians and families are encouraged to come participate in friendly competition to raise funds for Hemophilia of North Carolina.
The center is welcoming referrals from all providers including, pediatrics, neonatology, family practice, gynecology, maternal fetal medicine, urgent care and emergency rooms. “We are incredibly excited and very thankful to be able to provide these services as a hemophilia treatment center,” said Bryant. “If you have pediatric patients with any bleeding concerns, we look forward to seeing them at the St. Jude Affiliate Clinic HTC.”
For more information or to make a referral, call 704-384-1900.