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Support Groups

This page contains links to other Internet sites with information about support groups for parents affected by a birth defect. We hope you find these sites helpful, but please remember we do not control or endorse the information presented on these websites, nor do these sites endorse the information contained here.

Alliance of Genetic Support Groups

National Down Syndrome Congress

1370 Center Drive, Suite 102
Atlanta, GA 30338
Toll-free: 800-232-NDSC (800-232-6372)
Local: 770-604-9500
Fax: 770-604-9898
David Tolleson, Executive Director

National Down Syndrome Society

666 Broadway
New York, NY 10012
800-221-4602 or 212-460-9330

National Organization for Rare Disorders

P.O. Box 8923
New Fairfield, CT 06812
203-746-6518

S.O.F.T. (Support Organization for Trisomy 18, 13, and Related Disorders)

The Compassionate Friends

P.O. Box 1347
Oak Brook, IL 60521
708-990-0810